The first thing that I did when I received the news about my positive dx, was to start searching the Internet for information. I am a geek when it comes to computer related functions. Self proclaimed Google and Wiki fanatic. If it's there, I have convinced myself that I can find it. Doctors are taken back when you tell them take you surf and read information on the net. Warning flags fly and they all tell you of the dangers of believing what you read! It wears me out to have to tell them that I do not believe everything I read, and that I am very well versed in the dangers and downfalls of open surfing concerning the reliability of web information.
It's pretty bad when you have to use reverse psychology om your own Doctors and make them relax about the knowledge you have obtained outside their realm of expertise. I never have been crazy enough to insinuate that web research is of higher quality than what my doctors have studied and paid for in time, sacrifice, and good old hard work. I do however consider myself well armed with knowledge, and have stayed abreast with the information and choices that my Neuro last laid out for me. If you stay well informed and question the things you do not understand, asking your Doctor does seem to improve you rapport with them, at least it has worked well for me.
To sum up what I have learned, listen to your doctor, compare what information has been laid out from all sources. Question what you do not understand, and make your decisions based on all things offered. I believe that trust in you Doctor is imperative, to making the right choices. Opinions on this post, whether they be positive or negative, are always welcomed...
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In a sense, you're lucky, Jack. Half the battle is won when you at least have a good doctor/patient relationship. It really does make all the difference when you honestly feel good about your doctor and know that he/she has your back. It's been eleven years since my MS dx and I have yet to find such a doctor - PCP or neurologist. At any rate, good luck to you. Really good posts... and attitude!
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