Well I guess it's time to return to work. I hated letting this blog go dead, but now after much reflection, I truly feel that I can post with some knowledge about the situation that has brought me to this spot.
Finally after much debate with myself on DMD's, and the sticker shock from the cost passed on to those who suffer with MS, I came to the only conclusion that made sense. It's time to start on Copaxone. With some wrangling of our medical plan, it fell into place that my wife could have her own insurance. through her new place of employment saving us many dollars. My employer pays for the employee's Insurance, also offering a buy up plan that I purchased, since it would lower my out of pocket and deductible expenses. So we felt it would now be manageable to proceed with the DMD therapy.
It's not bad enough that you find out that you life is changing drastically, but to add insult to injury, it seems they are trying to send you to the poor house, just trying to save yourself from becoming incapacitated and totally dependent on others. I know they say that it cost's a lot of money for research and development, but when you look at total profits from most drug companies, I just have to shake my head. Makes you wonder if it's really in their best interest to cure any disease? I know that sound's cynical, but there is a lot more money treating ailments, than curing them. Mama always said that the green stuff was the "Root of all Evil", and I'm not going to dispute Mama, I tried that a long time ago and... enough said!
I did not start this blog to cry on any one's shoulder, but to make others aware of one's personal view of life behind bars with one of the most misunderstood disease's in our time of advanced medical history. Also I want to reflect on the people and friends that I have made, and the one's that I have yet to meet. I plan to keep an upbeat view on my life, as I feel there is no sense in beating myself down with the cards that have been dealt. Life is a card game, and it has winning and losing sides, the odds will always catch up with you sooner or later. Although some have better luck than others. Staying a Professional is what I am trying to achieve...
Saturday, September 26, 2009
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